Miss Katie is in Hospital!

Quick update for my followers not on my Facebook.

Miss Katie was admitted to our state Cardiac service at the New children’s hospital yesterday after we got sent here from the regional hospital.
a lot is going on, we are all still trying to understand this new part of Katie’s CHD journey.

Basically she is having very long runs of rhythms in her heart that are reducing the quality and efficiency of her single ventricle heart.

It has to be addressed and hopefully we get a treatment plan today, but Katie has many tests to navigate today also and they are talking to us about several causes and treatment options depending on the outcome of tests.

Please pray for her, will updates as I can.

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Miss CJ’s Cardiology Appointment

Yesterday was Miss CJ’s 6 monthly check up with her Cardiologist the amazing Dr “J”, he has been Miss CJ’s Cardiologist since birth.

The check up went well and Miss CJ is stable but we do need to check on the pressures within her heart. (we have been putting this off for a couple of years) This can only really be done via a Cardiac Catheter in hosptial, so we talked about that and got a tentative booking for Oct 2012.

Miss CJ is not impressed, she really struggles as a 14 year old with having a life restricting heart condition…….who can blame her?, while other girls her age are talking about the latest pop group, or status update on Facebook she is worrying about having a Cardiac procedure.

Some days it just sucks that my child has a complex Congenital Heart Disease………..